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 » Sickle Cell Anemia

Sickle Cell Anemia is a serious condition in which the red blood cells can become sickle-shaped (that is, shaped like a "C"). Normal red blood cells are smooth and round like a doughnut without a hole. They move easily through blood vessels to carry oxygen to all parts of the body. Sickle-shaped cells do not move easily through blood vessels; they are stiff and sticky, and tend to form clumps and get stuck in blood vessels. The clumps of sickle cells block blood flow in the blood vessels to the limbs and organs. Blocked blood vessels can cause pain, serious infections and organ damage.
As per DMER draft proposal of June 2008 Sickle Cell Disease Control program is implemented in 21high prevalence districts in phase wise manner by NRHM since 2008.
Phase I  -  (2007-08) : Thane, Nashik, Nandurbar, Amravati, Gondia, Gadchiroli,Palghar (New District Established in 2014)
Phase II  - (2009 -10):   Bhandara, Nagpur, Chandrapur, Wardha, Yavatmal
Phase III - (2010-11):   Dhule
Phase IV -  (2011-12):   Jalgaon, Nanded, Washim, Akola, Bhuldhana, Aurangabad, Raigad.
Phase V  –  (2012-13):   Hingoli (as per order of Hon. Lokayukta, Maharashtra State, Hingoli district is included)

Objectives and Goal of the program:

  • Creating Public awareness.
  • Screening general population. (Target age group 1 to 30 years, Pregnant women, family members, Symptomatic individuals of all ages)
  • Training of Medical officers & other paramedical staff at PHC, RH & DH for testing, counselling & treatment.
  • Equipping hospitals with electrophoresis machines.
  • Providing screening facilities at Primary Health Centre, Rural Hospitals, Sub District Hospital & District Hospital.
  • Referring positive cases from Solubility positive samples for electrophoresis test to nearest Electrophoresis testing Centre.
  • Identifying carrier & sufferer.
  • Issuing yellow cards to carriers and red cards to diseased individuals.
  • Counselling carriers& sufferers for marriage and family planning &Sufferers for importance of regular treatment.
  • Providing Prophylactic & Symptomatic treatment at Primary Health Centre, Rural Hospitals & District Hospitals.
  • Speciality treatment at District Hospital & Medical College.

    Role of NGO's in Sickle Cell Program in districts
  • To Create Awareness about Sickle Cell Disease.
  • To motivate community for Solubility test.
  • To transport Solubility positive blood samples for electrophoresis test.
  • To register Sickle cell sufferer & carrier.
  • To Counsel Sickle cell sufferer & carrier for marriage and family planning. Sufferers are counselled for regular treatment & Counselling for prenatal diagnosis (CVS)is given to eligible couples.
  • To distribute colour coded cards. (Red-Sufferer, Yellow-Carrier, White-Negative)
  • Home Visits to Sufferers.
  • To prepare& distribute IEC in local/tribal language
  • Pregnant mother to counsel for early registration & prenatal diagnosis.
    Arrange meetings & testing camps for Schools, Collages & Ashram Schools etc.

District

Name of NGO Appointed

Thane

Navoday Gramin Sanstha, Jawhar, Thane

Nashik

Gauri samajik Sanstha, Nashik

Nandurbar

Jijau Maratha Mahila Samaj Unnati Mandal, Nandurbar

Gondia

Prabuddha Vinayaki kalyankari Sanstha, Tiroda, Gondia

Gadchiroli

1.Arogyadham Kustharog Nirmulan Sanstha, Kurkheda, Gadhciroli

2. Ektal Samajik Shishan Sanstha, Gadchiroli

Nagpur

Aniket Bahuuddeshiya Sanstha, Nagpur

Wardha

Shri Namdev Maharaj Bahuuddeshiya Shikshan Sanstha, Wardha

Chandrapur

Sarvodaya Yuvavikas Sanstha, Chimur, Chandrapur

Bhandara

Bharatiya Aushadhi Anuisandhan Sanstha, Bhandara

 Institution wise Testing & Services to be provided
In this program to achieve the objective basic screening test is being made available at all the health institutes in project area.
Positive samples in basic screening test (Solubility test) are sent to Electrophoresis centre for confirmatory test i.e. Electrophoresis test
Institution wise services to be provided in SCDCP are as follows


Sr. No.

Institute

Services to be provided

1

PHC

1)Free Solubility testing
2)Counseling
3)Regular Health check up of Sufferer
4)Prophylactic & Symptomatic  treatment to be provided
5)Maintenance of  records & register

2

RH/ SDH/ WH

1)Free Solubility testing
2)Free Electrophoresis testing (only if Electrophoresis centre)
3)Counselling
4)Regular Health check-up of Sufferer
5)Prophylactic & Symptomatic  treatment to be provided
6)Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
7)Maintenance of  records & register

3

DH

1)Free Solubility testing
2)Free Electrophoresis testing (Electrophoresis centre)
3)Counselling
4)Regular Health check-up of Sufferer
5)Prophylactic & Symptomatic  treatment to be provided
6)Blood transfusion to Sickle Sufferer if blood storage centre or blood bank is available
7)Specialty treatment
8)Maintenance of  records & register
9)HPLC Test (of HPLC Centre)
10)Telemedicine referral

 

Institutions involved at districts in SCDCP


Sr. No.

Name of District

No. of PHC'S

No. of RH/SDH

No. of DH

No. of WH

No. of Medical College

No. of Electrophoresis testing centers

1

Thane

33

8

1

1

1

2

2

Palghar

46

12

0

0

0

3

3

Nashik

104

28

1

1

0

4

4

Nandurbar

58

14

1

0

0

5

5

Amravati

56

13

1

1

0

7

6

Gondia

40

11

1

1

0

5

7

Gadchiroli

45

12

1

0

0

7

8

Nagpur

49

11

0

1

2

4

9

Wardha

27

8

1

0

0

3

10

Chandrapur

58

13

1

0

0

5

11

Bhandara

33

9

1

0

0

3

12

Yavatmal

63

17

0

0

1

5

13

Dhule

41

8

1

0

1

3

14

Jalgaon

77

20

1

0

0

7

15

Nanded

65

16

0

0

1

5

16

Washim

25

6

1

0

0

2

17

Akola

30

6

0

1

1

3

18

Buldhana

52

15

1

0

0

5

19

Aurangabad

50

13

0

0

1

4

20

Raigad

52

13

1

0

0

4

21

Hingoli

24

4

1

0

0

2

Total

1028

257

15

6

8

88

State Physical Report


Physical Report

Year

Total Solubility Test

Total Diseased

Total Carrier

2007-2008

15310

-

-

2008-2009

68590

4

74

2009-2010

421246

1055

11941

2010-2011

1182057

2872

24005

2011-2012

3121263

3059

37785

2012-2013

2155666

2025

25223

2013-2014

3847479

2255

32886

2014-2015

3063505

2192

28982

2015-16 (April 2015-Feb 2016)

3281168

1750

23099

Total

17156284

15212

183995

 
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